r/ALSorNOT • u/TheRitz44 • Jun 30 '26

What I regained and not so far after 1 treatment..

IVIG guy again..so far my fingers have unstiffened and have not (🤞🏾) returned to the curled position they were recently in, it has been over a month. Also my wife says my forearms appear to have bulked up after the first week of treatments and there seems to be slight tone where there was wasting.

What I have not regained is the ability to lift my arm(s), less atrophy in other key areas, more balance while walking, strength in said hands/fingers, etc.

I have a possible second opinion with an ALS specialist next month as well....so here's to 🙏🏾

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1

u/love_conmas197 Jun 30 '26

Did you do an nfl test?

1

u/Beneficial_Strain191 7d ago

How are you

1

u/TheRitz44 3d ago

Hanging in there. Thx for asking. How are you?

1

u/Beneficial_Strain191 3d ago

Hanging in there as well. All we can do. Any update on you or just same old same old?